DC Health held four focus groups with a total of42 Latino/a/x’s living with HIV. The focus groups were held in partnership with two community-based organizations. The groups discussed what type of services or support was the most valuable in helping them cope while living with HIV.
Some of the biggest barriers are language-related and extend beyond translating words from English into Spanish. There is little trust when using an interpreter when the feeling is that the person cannot really represent them. In addition to not trusting that the correct information is being communicated, people are overwhelmed having to repeat their story so many times to different people for translation purposes: Is the same message getting across, or different messages to different providers based on the quality of the translation? Some participants did not trust messages about U=U.
Latinos trust and feel safe and comfortable with their peers, particularly in a health care setting, where language can be a barrier to asking clarifying questions and hearing information in an accessible way. Most Latinos living with HIV in these groups knew about PrEP and noted it was important progress in HIV prevention.
Education efforts for U=U should focus on using peers or support groups rather than medical professionals to deliver information. Other ideas to better serve the Latino HIV-positive community include: